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Important Resources

Miscellaneous Resources

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American Association of People with Disabilities - A non-profit cross-disability organization whose goals are: unity, leadership & impact.

American Association on Mental Retardation - AAMR is an interdisciplinary organization of professionals (and others) concerned about mental retardation and related disabilities.

Americans with Disabilities Act Document Center - Health information, State and Federal Statutes, Regulations.

The Arc - National organization of and for people with mental retardation and related developmental disabilities and their families.

The Arc of San Diego - San Diego, California based organization helping people with disabilities and their families by working in partnership to create opportunities to achieve their individual goals within the community.

Association of Regional Center Agencies - ARCA state website represents the 21 California regional centers that provide services to more than 142,000 people with developmental disabilities.

Autism Research Institute - Autism institute in San Diego, California.

Autism Society of America - National site providing definitions and important autism resources.

Autism Society of America - San Diego Chapter providing autism information and resources.

Center for the Study of Autism - Autism center in Salem, Oregon.

DDS - The California Department of Developmental Services.

San Diego Regional Center - Serving people with developmental disabilities in San Diego and Imperial Counties.

Down Syndrome website - Compiled from the contributions of experienced professionals and knowledgeable parents who subscribe to the Down Syndrome listserv and newsgroup.

Disability Resources Monthly Directory - An index of hundreds of publications, audiovisual materials, on line services, and other information resources every month. Serving developmentally disabled people.

Epilepsy Foundation of San Diego County - Epilepsy organization based in San Diego County.

Fragile-X Syndrome Research Foundation - This site lists the symptoms of fragile X syndrome as well as the causes of the syndrome.

President's Committee on Mental Retardation - U.S. Department of Health and Human Services. Administration for Children and Families.

United Cerebral Palsy Associations - A leading source of information on cerebral palsy and advocate for the rights of persons with any disability.

Support Groups

Birth and Beyond Years (military families)
Email: cbarnswell@nmcsd.med.navy.mil
Web: www.asymcasd.org
Provides support for military families with young children with special needs and/or chronic illness. Meets 1st Tuesday of each month, 6:30pm at the Pediatric Conference room Building 2-1 of the Naval Medical Center.

Exceptional Family Resource Center
Email: efrc@projects.sdsu.edu
Web: www.EFRConline.org
Phone: 800-281-8252
Coffee and Conversation for families of children birth to five. The 3rd Friday of the month 9:00AM-11:00AM. Come, meet other families and share experiences. Gain information and resources. Refreshments provided.

Fragile X Center of San Diego
Web: www.fragilexsandiego.org
Children's Hospital, 3020 Children's Way Ste.407, San Diego

Kaiser Autism Support Group
Phone: Jill Erikson, LCSW at (858) 573-5216
2nd Tuesdays from 5-7pm at Kaiser Vandevere (must be Kaiser member).

Parent Advocates Seeking Solutions (PASS)
Phone: (858)748-2594
PASS, a parent support group for parents of adult children (15 years and up) with developmental disabilities, is dedicated to provide parental guidance in order to cultivate, enhance and supervise the inalienable rights of their children so that the optimum value and fulfillment of life will be accessible and maintained. Bartholomew's Episcopal Church, 16275 Pomerado Road in Poway

Supporting Parents of Autistic Young Adults (SPAYA)
Phone: (858) 560-0555
Email: SPAYA@san.rr.com
Meets at the San Diego Regional Center, Room 101, 4355 Ruffin Road in San Diego

Understanding Autism Together
Web: www.asymcasd.org
Offered by the Armed Service YMCA. Support program for families of children with Autism or PDD. Sibling support groups offered. Meets 3rd Monday of each month, 6:30pm at the Pediatric Conference room Building 2-1 of the Naval Medical Center.

 

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